5 weeks

The boys have been all over the place the past few days but were a lot more stable again this morning so we had a good visit.

Asher had been having a lot of desats and low hemoglobin so they gave him another blood transfusion yesterday which has seemed to help. He also has some reflux issues so they discontinued his milk fortifier for a day to give his belly a rest and are now slowly increasing it again as he tolerates it. The other day he was so miserable that I had to put him back 20 minutes into a kangaroo care session but today he did very well. I am still getting over food poisoning (nice date night!) and Jordan hadn't had a turn yet so I conceded and let dad do kangaroo care. Asher was a star and Jordan was thrilled.

Nolan has recovered from the bleeding in his lungs but has now developed yet another lung infection which could explain why he had gone several days with basically no tolerance to being handled. I couldn't even put my hands in on him because every time he was touched his oxygen and heart rate dropped. But now that the infection is being treated with antibiotics he is behaving much more like himself and I got to give him some good squeezes today without any consequence. Once they see that he is over this infection they will try again to challenge him on the ventilator, hoping to get him on CPAP sooner than later.

5 weeks down, still fighting and amazing us with their strength and resilience!