Several weeks ago a friend sent me an article written by a mom of a severely disabled baby. Since then I have read it over and over and over again, and cry every time. I know that what this family is going through is quite different than what we've been through - but it gives a glimpse into my brain, being the mother of babies born under not so perfect circumstances, one of whom may be heading down a more difficult path than we'd hoped.
Like her, I don't wish to offend anyone by saying that I share her thoughts, but I really do, no matter how well meaning everyone's comments are. So don't hate me ok - any of you other parents who've told me you don't know how I coped - I do what I have to do, as would you.
You can check out the article here.