Wednesday, March 23, 2011

Diagnosis, Not Definition

The past couple of days have been hard. Harder than I would have expected, given that we knew this was coming. We have been told by families who have been through this that grieving the diagnosis is normal...prepared as we thought we were.

I am going to keep repeating to myself that "CP is Asher's diagnosis, not his definition".

We will NOT let this define him, it will only be a part of him - a small part.

The important parts - the real parts that define him - will shine.

If you ask Rio how she can tell her brothers apart, she will say that Asher's eyes are smiling.

THAT is what defines him, not CP.

Disclaimer: No he's not a maniacal vampire. Only blueberries were harmed in the taking of this photo. (Another oldie, but one of our faves).

11 comments:

  1. OMG. How cute! Love the comment by Rio...it makes tears run down my cheeks.

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  2. Beautiful! I think Rio has it just right.

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  3. What a beautiful comment from such a little girl. She is wise beyond her years!

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  4. In our house, CP stands for Cutie Pie before it stands for anything else. I remember these day you are living right now, the ones immediately following diagnosis. Keep searching for the beauty... and hugs to your family.

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  5. Asher's eye are smiling AND he could sweep a room with those eyelashes! Jealous!

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  6. Your strength, perseverance, and courage continue to amaze me. Those kids don't fall far from the tree, and they will continue to amaze me too.

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  7. You are so right Tracey! It IS a diagnosis, but it DOESN'T define him. Asher is so much more than CP. He is that flirty little boy who melts everyone's heart, he is that smiling child, he is Asher. He is already so much more than CP and will continue to be so much more than CP!

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  8. You guys are awesome. Asher will have help beyond what some children dream of and love beyond what some children will ever know...you will be fine. Asher will continue to smile and charm, and the challenges will be overcome because you are an amazing family. I wish you nothing but the best with all of the challenges and blessings you face everyday! Thinking of you....
    Cheryl.

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  9. I am glad to have found your blog. We are 3 years past diagnosis for my daughter.
    It took me a while for the greiving process to set in. But it did happen. And it was hard.
    Luckily my sweet Elsie Rose is the sunshine of not only our lives, but anyone she meets.
    These little ones have such beautiful souls. And we are better for knowing them.
    Thanks for sharing.

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  10. I just commented on your other post, but we're almost 1.5 years past diagnosis, most days we're great, there are still things that creep up on me when I'm not expecting it. I find it SO much better to be able to talk to people that are going through the same thing!

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