Yesterday I posted the following status on my personal Facebook page:
Today a woman stopped me on the street to say her friend has a son in a wheelchair. And now she sees my son in a wheelchair. What causes people to be in a wheelchair??? Because she has a son so she's really worried - is HE going to be in a wheelchair too?!
There are no words...
People were shocked when they read about the ignorance I am faced with, obviously. But you know what? I wasn’t - because I’m used to it. Isn’t that a sad statement? I’m used to people’s ignorance about my child in a wheelchair (or my child with a “different” looking walk for that matter).
Don’t worry, it’s not always comments like that. But it’s always stares. Always. Always. Always.
People are always staring at us.
And in fairness I can say they’re not very often stares of pity. Usually when people are caught staring I can tell their thoughts are “What a little sweetie”, not “Oh that poor dear”. But that doesn’t take away from the fact we are getting stared at all the time. And those of you with exceptionally cute kids, don’t go thinking this is the same as the stares your blond haired blue eyed beauty is getting. I promise you it’s not like that.
Hopefully most of the time Asher and Nolan miss it and are oblivious. But I am not. I am completely aware that I always need to be “on”. I could go on and explain to you what that feels like, but when Mary Evelyn from What Do You Do Dear? has already spoken on the matter so eloquently, I’ll let her do the talking.
Please, have a read here, just what it’s like to be out and about with your clown baby. (Or in my case maybe superhero babies is more fitting!) And a word to the wise - when you think your staring at someone is subtle (we all do it, me included), it's probably not.